PRYR RQST Pray for my son (Update post #94)

[Cardinal]

Adding my prayers for the little guy too.

 

[Maryh]

Prayers for your little boy.

 

[marsh]

Prayers sent

 

[fairywell]

Praying for your son, and.you

 

[Normallguy]

Adding my Prayers.

 

[Pancakes45]

Prayers for your son!

 

[WildDaisy]

He’s moderate to severe on the autism spectrum. Sometimes it’s hard for him to communicate what’s going on. He told the teachers his eyes were shakey before he had it.
This is a first time for him.

Praying as well.

I also have an adult child on the spectrum. If he is on medication for it, please have them screen for linkage. Many of the meds they prescribe for autism have seizures or tremors as side effects. Almost all of them are actually medications that are primarily used to treat epilepsy (Celexa, LExapro, Zoloft, Abilify, Respiradal, Catapres, etc)

We didnt get ahead until we took our son off all meds and realized that autism is best treated with skills, not meds. They made him a zombie. But once we took him off the meds, he became vocal and started to communicate more, and we taught skills for enabling him to deal with triggers.

He was non-verbal for the first 10 years of his life. Today he is almost 30 and a professional private chef with two college degrees. There is hope!!

 

[ParanoidNot]

Prayers sent!

 

[Kathy in WV]

Of course! You have mine right now. Keep us updated please...

 

[Siloam]

Praying.




Siloam

 

[plantman]

Sent

 

[Kewpie]

Prayers going up!

 

[rob0126]

prayers

 

[Imrik]

**UPDATE**
Got the EEG results back. He has been diagnosed with frontal focus epilepsy.

 

[Kathy in FL]

**UPDATE**
Got the EEG results back. He has been diagnosed with frontal focus epilepsy.

I tried to look it up but it said "a common type." For a parent/child nothing about epilepsy seems "common."

I am praying that the treatment is immediately effective.

 

[Terrwyn]

Very sorry to hear. Google Charlotte's Web CBD oil and epilepsy.

 

[Squid]

May he find healing and for you strength.

 

[John Deere Girl]

I'm praying for you son and your family! As a parent, it's a scary thing to see and deal with. BTDT.

 

[Southside]

Prayers said for your son and the family.

 

[luluwhtbrd]

 

[workhorse]

Praying for all of you. Question is this a youth type that he may grow out of or is it able to be treated with drugs. Have some friends going through this same thing. The doctors have yet to give a diagnosis and its almost 2 years now.

 

[thompson]

Prayers continue for your son and you and your family.

 

[Pinecone]

Praying for your son and your family.

 

[pauldingbabe]

Prayers form us as well.

I remember sitting with my 10 month old DS while they ran those tests....

Please start keeping a medical journal with your little one. Sometimes the journal can help in finding patterns and spikes. If everyone keeps just a little bit of observation, once a month y'all could sit down and see if there is any unseen instances or comparable episodes.

Again y'all are in our prayers.

 

[Dennis Olson]

As long as it’s not massively debilitating or fatal, that’s a win.

I apologize for only seeing this thread now. Prayers for him. And you.

 

[Imrik]

Praying for all of you. Question is this a youth type that he may grow out of or is it able to be treated with drugs. Have some friends going through this same thing. The doctors have yet to give a diagnosis and it’s almost 2 years now.

The Diagnosis came from Nortons Children’s Hospital in Louisville. We saw his pediatrician today. Pediatrician thinks there may be a chance he could grow out of it.

 

[Babs]

Continuing to pray for your precious son, for you and your family.

 

[Kathy in FL]

Prayers form us as well.

I remember sitting with my 10 month old DS while they ran those tests....

Please start keeping a medical journal with your little one. Sometimes the journal can help in finding patterns and spikes. If everyone keeps just a little bit of observation, once a month y'all could sit down and see if there is any unseen instances or comparable episodes.

Again y'all are in our prayers.

Excellent idea.

 

[anna43]

Sorry that your son has epilepsy, but majorly thankful it was not a brain tumor or some other life-threatening condition. Fortunately, today there are medications that will control seizures.

 

[Wildwood]

**UPDATE**
Got the EEG results back. He has been diagnosed with frontal focus epilepsy.

I'm thankful you have a diagnosis and as hard as it it to hear that, at least you know what you are dealing with.

It has been pure hell not having a diagnosis for my DIL. We still have no idea what we are dealing with and that is terrifying.

Your sweet boy is in my prayers along the rest of you.

 

[night driver]

Showing my ignorance here--- but--- does Norton have a "Comprehensive Epilepsy Program" onsite?? My SUSPICION is they have that specialty. IF NOT, then you want to find one (IIRC Vanderbilt has one, and there a number of them around the country).
They do WONDERS!!

 

[Housecarl]

Prayers sent

 

[Kris Gandillon]

Prayers for this situation.

 

[AddisonRose]

Praying for your son. Children’s Hospital here in Dallas uses Keto diet as a protocol for children with epilepsy.

 

[night driver]

Praying for your son. Children’s Hospital here in Dallas uses Keto diet as a protocol for children with epilepsy.

I would suspect they ALSO use the opposite, all fats, diet for other kids as well. With that one, PARENTS may buy in, but relatives have a LOT of problems not slipping the kid "some heathy veggies, etc".
There are a LOT of treatments being used across the whole spectrum for this.

 

[kyrsyan]

Diagnosis and treatment can make a big difference. Prayers that they help him to have a relatively normal life.

 

[Rabbit]

Praying

 

[summerthyme]

I would suspect they ALSO use the opposite, all fats, diet for other kids as well. With that one, PARENTS may buy in, but relatives have a LOT of problems not slipping the kid "some heathy veggies, etc".
There are a LOT of treatments being used across the whole spectrum for this.

Keto is NOT the opposite of "all fats" diet you're talking about.

But yes, there have been some amazing cures/remissions with diet and supplements. Hopefully, his is very mild and easily controlled.

Praying

Summerthyme

 

[Tennessee gal]

Praying for your dear son.

 

[Dozdoats]

God bless you all.