fibro-my-HELL-gia--UPDATE Post #59--
- Thread starter BigFootsCousin
- Start date
BigFootsCousin
Molon Labe!
Has anybody here had any success using Cymbalta? I'm seeing my PCP in two weeks and I'm trying to learn as much as I can as fast as I can.
BFC
BFC
LeafyForest
Veteran Member
Thanks for the web site's - my sister has many fibro symptoms and so am sending these sites on to her.
Tundra Gypsy
Veteran Member
My younger sister has fibro.......and RLS.....restless leg syndrome. Does anyone have RLS? I was wondering if they went hand in hand. Out of the four sisters, we were trying to figure out why our younger sister has this and the other three don't. She was the only one who took the polio sugar cubes when she was younger without my mother knowing; we didn't.....my mother didn't trust the medical profession then...later we were told the first polio batches were contaminated...seems like things don't change with the pharms....
missd
Senior Member
BigFootsCousin
Molon Labe!
banana.republic.us
Senior Member
My wife has FM.
She went to a rheumatologist who did a bunch of blood work.
He prescribed Magnesium malic, and Vitamin B6. If she takes it she's good to go. If she misses a couple of days it starts to kick up again. It's rather debilitating for her.
She went to a rheumatologist who did a bunch of blood work.
He prescribed Magnesium malic, and Vitamin B6. If she takes it she's good to go. If she misses a couple of days it starts to kick up again. It's rather debilitating for her.
banana.republic.us
Senior Member
I think she takes the Magnesium 3 times a day. They're large pills called Magnesium Malate. The B-6 we bought from Puritan pride... That I think is once a day, but it's water soluble so I doubt a couple of times a day wouldn't hurt. This combo worked for her.
After the Doc got her going he closed her file and told her to come back if you have problems. That was 2 years ago.
After the Doc got her going he closed her file and told her to come back if you have problems. That was 2 years ago.
Thank you BR. I've often suspected a magnesium/calcium connection. My dd also experiences migraines and I think the whole lot is connected in some way and for some reason I decided that Nature's Calm would be something that would flatten the migraines and possibly the FM. Of course, you cannot force someone to take something they don't want to and since I'm not a MD I don't know anything (LOL). I'll breeze your post past her & see if she'll grab some on her own and try it.
I'm not exactly sure where the B6 comes in, but sure would be better for you and less expensive than Lyrica. Rheumy gave dd some samples of that; we looked at the side effects and decided that would be a last resort. He also recommended a brand of D3 that he apparently gets some kind of $ back on. The dosage IS verified in the lab and all that good stuff, but I had D3 and we used that and her levels came up to a proper level so we didn't switch to his. It appeared to be almost a multi-level marketing thing where if we entered in his number he would get some of the proceeds. It was pretty expensive for D3 - not super-expensive, but I didn't see a reason to put his kid through college over time.
banana.republic.us
Senior Member
Doc had her on Lyrica for a bit as well. Wifey doesn't comply with medication very well, and Doc picked that up. She asked if she needed to buy the vitamins from him and he said no. He's a bit of a dry egg who could care less and be happier if he never had to see you again. For a doctor that's a PRIMO trait IMO>
Kathy in WV
Down on the Farm...
I have it... It SUCKS. . IT SUCKS!!! I have a question and a comment. My ex was in Desert Storm and while there he caught a bad Mycoplasma infection and nearly died. About 4-6 weeks after he came home I got sick for 2 weeks and shortly after the pain started. Coincidence? Maybe. This year, before Christmas, I got mycoplasma pneumonia and I mean I was really sick. The body pain was horrific. And it was the pain of fibro, but greatly magnified. The pain was in all my fibro places but it was pain on steroids. What if some of what the doctors are calling Fibro is actually a constant low grade myco infection or a recurring myco? I was hospitalized and had a Levaquin IV, then 10 days of oral lev. Approx. 4 days after I finished with the meds, I woke up with fever and pain again. I dosed with colloidal silver and got better again. Bloodwork is clear now, but I've continued to have periods of low fever and hurting. It reminds me of a friend of mine who has malaria the way it comes back....
duchess47
Has No Life - Lives on TB
I've thought for a long time that fibro might be *cured* to some extent, maybe completed by massive antiiotics for a long period of time - not a week but maybe a month or two. I have noticed that when a doctor puts me on antibiotics for a sinus infection or something I will feel better for a few days. Try to get a doctor to agree to do that though. I do take OregoMax though, on for a couple of weeks, then off for awhile. You're right fibro SUCKS.
packyderms_wife
Neither here nor there.
I have yet to have a sinus infection cleared with traditional antibiotics, everytime I get a nasty sinus infection after the obligitory 3-4 weeks of antibiotics I demand a course of Flagyl and POOF seven days later I'm cured! Flagyl is deemed an antibiotic but in reality it is an antifungal. Most sinus infections are fungal infections.
K-
packyderms_wife
Neither here nor there.
You just described Lyme's Disease.
duchess47
Has No Life - Lives on TB
Oldironboy
Member
I'm batting 1,000 with Kangen Water and Fibromyalgia sufferers. Unfortunately, I have to say I have only had two customers with the malady so far. My pastor's wife's symptoms disappeared 24 days after she started drinking the water. Another customer's symptoms were relieved tremendously as well. Enough that she invested in the machine. I would be happy to provide much more information to anyone interested. You can contact me through my website link below.
BigFootsCousin
Molon Labe!
UPDATE: 5/9/14
Hey Ya'll-
Well, after my "Man-Up" Doc had gotten in-my-face for 20 minutes, told me "there's NOTHING that I can do for you anymore", etc, etc, I left his office quite down-trodden and feeling utterly lost and honestly......hopeless.
One thing that he had told me, which I hadn't done yet at the time, was to go see a particular ND (Naturopathic Doctor) "because there's nothing that modern medicine can do for you anymore" he said. So I went.
Wow. She was such a lovely person. Smart. Focused. Caring. So far, she's only seen me one time, but she's had quite an impact on me, and.....she quite possibly has saved my life. She called one of her local Doctor friends, who hasn't been accepting any patients, and she told her about me and insisted that she take me on as a new patient. So, the new Lady Doctors office called me and we set up an appointment......and I got 'in' in just a few days.
So I visited another lovely, caring female Doctor, who listened and seemed genuinely concerned, and interested in what I had to say about my symptoms. I worked the next couple of days, so an NPO blood draw was out of the question (12 hour shifts) but on my 1st day off I went to the hospital and had 12 vials of blood drawn, some of it being sent all the way to the East Coast (from Orygun) for analysis.
I went in for my 2nd visit, and the Doctor greeted me with a hug. She had spent a good part of her day off (Saturday) calling other specialists who had been taking care of me, and she also went to the Hospital and researched all of my previous visits, labs, MRI/MRA's, xrays, CT's, out-patient procedures, inpatient stays, surgeries, H&P's etc.....she nailed it all down, and gave me a working diagnosis, when a whole lot of other 'Doctors' were just not able to figure out what has been ailing me. The diagnosis that she gave me just makes sense......for EVERYTHING that has been going on for the last few years, even as to why I felt like I was truly dying, and me telling other Docs that I had felt like I was.....only to be ridiculed for saying, yet alone thinking like that.
Apparently I have Wegener's Granulomatosis.
About 10-20 people per million get this disease. Folks, I won the lottery as far as diseases go. I'm ok with this, as now, I kinda have an initial plan of attack, and we now know what we're fighting, and what to expect.
And as to what Bev said in post #38-
BFC has 'Fibro'- Ha! (spits on ground) Fibro is the least of my worries.
Grateful all around, and humbled by His Majesty-
BFC ><>
Hey Ya'll-
Well, after my "Man-Up" Doc had gotten in-my-face for 20 minutes, told me "there's NOTHING that I can do for you anymore", etc, etc, I left his office quite down-trodden and feeling utterly lost and honestly......hopeless.
One thing that he had told me, which I hadn't done yet at the time, was to go see a particular ND (Naturopathic Doctor) "because there's nothing that modern medicine can do for you anymore" he said. So I went.
Wow. She was such a lovely person. Smart. Focused. Caring. So far, she's only seen me one time, but she's had quite an impact on me, and.....she quite possibly has saved my life. She called one of her local Doctor friends, who hasn't been accepting any patients, and she told her about me and insisted that she take me on as a new patient. So, the new Lady Doctors office called me and we set up an appointment......and I got 'in' in just a few days.
So I visited another lovely, caring female Doctor, who listened and seemed genuinely concerned, and interested in what I had to say about my symptoms. I worked the next couple of days, so an NPO blood draw was out of the question (12 hour shifts) but on my 1st day off I went to the hospital and had 12 vials of blood drawn, some of it being sent all the way to the East Coast (from Orygun) for analysis.
I went in for my 2nd visit, and the Doctor greeted me with a hug. She had spent a good part of her day off (Saturday) calling other specialists who had been taking care of me, and she also went to the Hospital and researched all of my previous visits, labs, MRI/MRA's, xrays, CT's, out-patient procedures, inpatient stays, surgeries, H&P's etc.....she nailed it all down, and gave me a working diagnosis, when a whole lot of other 'Doctors' were just not able to figure out what has been ailing me. The diagnosis that she gave me just makes sense......for EVERYTHING that has been going on for the last few years, even as to why I felt like I was truly dying, and me telling other Docs that I had felt like I was.....only to be ridiculed for saying, yet alone thinking like that.
Apparently I have Wegener's Granulomatosis.
About 10-20 people per million get this disease. Folks, I won the lottery as far as diseases go. I'm ok with this, as now, I kinda have an initial plan of attack, and we now know what we're fighting, and what to expect.
And as to what Bev said in post #38-
Well, I coulda been D-E-A-D years ago with this disease (Wegener's), and I am amazed after doing what little reading as I have on it........that I'm still alive. I'm a very lucky man to still be here. I figure that G-d has something for me to do still, 'cause I'm still here!
BFC has 'Fibro'- Ha! (spits on ground) Fibro is the least of my worries.
Grateful all around, and humbled by His Majesty-
BFC ><>
packyderms_wife
Neither here nor there.
Praise God!!! And praise Him that your doc was honest enough to tell you he couldn't help you and for recommending this naturopath, etc. God does indeed have a plan for you BFC!!!
K-
Wow! What a difference an accurate diagnosis makes, eh? Oh, I get SO frustrated with doctors these days... so many of them are simply hacks. They're just fine diagnosing the dozen or so most common problems, and absolutely useless if you have anything else! And they're SO quick to basically blame the patient when they can't quickly "cure" (actually, knock the symptoms down) it.
God is SO good! I do hope someone is sending your previous doctor a nice, detailed explanation of what he missed! Maybe it will save someone else, or at least keep him from blowing off another sufferer who really *isn't* making it all up!
Summerthyme
God is SO good! I do hope someone is sending your previous doctor a nice, detailed explanation of what he missed! Maybe it will save someone else, or at least keep him from blowing off another sufferer who really *isn't* making it all up!
Summerthyme