PRYR RQST Downs baby

Raphaelle

Inactive
So many good things on this thread.....

Bethshaya, what a fine analogy. Could apply to any of us at any time, not just parents of disadvantaged children.

Waz, good comment about God's power to heal. My belief also.

I appreciated the comments about false positive tests. A middle aged mom-to-be in our church was told when she was pregnant about three years ago that her baby would have Downs. The physical abnormalities were present on the ultrasound. The child was born healthy and perfect. We are all traditional Catholics, so no chance that that baby would have been aborted. We all just prayed. A lot.

Then, fast forward to two years ago.... my son and his wife had a Downs Syndrome baby whose condition was never detected by all of the standard prenatal tests. She went to the hospital expecting another happy ending and ... boom... Downs Syndrome.
Big changes for all of us instantaneously. Three hours after birth his lungs failed, and he was flown to the Dell Children's Center in Austin, Texas, given emergency baptism by the priest on duty and remained in intensive care for six weeks. He was hooked up to 27 machines and attended by a team of 7 people around the clock. Everybody was telling my son just to let the baby die. I didn't take sides in the discussion because I knew that it was best for my son to do what his conscience directed him to do ,and for all of us to accept God's plan for our lives. For many weeks as I looked at him, I didn't see how survival was possible-- it was that bad. My son had been raised with a strong pro-life witness from home, church and family, and I guess it took root, because he insisted that this child would live and that he would do whatever it took to make that possible. The child did survive ,and I am convinced at this point that God required this experience from all of us, and especially for my son, in order to give opportunities for development and self-sacrifice. As others have said, he is indeed a lovely little boy, and we are expecting the very best as time passes. I do, however, pray for complete healing for my grandson every day. There are no limits to God's grace and generosity.

My heart goes out to this little family. We've been there, and it's not easy.
 

Siskiyoumom

Veteran Member
Our family made the journey to Holland.

Our dear son was born with Hurler Syndrome.

I am thankful that I did not know before his birth that he was going to have such a multitude of medical issues. Before his birth I was pro choice.

After his birth and through out his short life he brought me to the place of being pro life.

Our prayers weren't answered in the way we had hoped, but God knows the reason why. We all just need the strength to accept it!

Such wise words for parents facing uncertainty and how we can respond to the trials of having a special needs baby.

The journey begins with a minute by minute walk, grieving for what one hoped for and falling in love with your baby as she or he is.

Was our journey to Holland difficult?

My yes it was.

Was it worth the cost?

Yes indeed.

The many mini miracles our family was blessed with will always be in our hearts and minds.

The gratitude we have for our Loving Father God transcends the pain and sorrow.

May your family be encouraged and strengthened no matter what the outcome is.
 

cmm

Veteran Member
Praying for you and your family. I remember being devastated when my wife gave birth to a Downs baby - our 2nd child. Burt what a blessing he has been. They are a special breed. They have so much love to give . Be grateful. They are a gift from God.
 

Dinghy

Veteran Member
Ode to Special Moms

Most women become mothers by accident, some by choice, a few by social
pressures and a couple by habit.

This year, nearly 100,000 women will become mothers of handicapped children.
Did you ever wonder how mothers of handicapped children are chosen?

Somehow I visualize God hovering over Earth selecting his instruments for
propagation with great care and deliberation. As he observes, he instructs
his angels to make notes in a giant ledger.

"Armstrong, Beth, son, patron saint, Matthew. Forrest, Marjorie, daughter,
patron saint, Cecilia.

"Rudledge, Carrie, twins, patron saint, give her Gerard. He's used to
profanity."

Finally, he passes a name to an angel and smiles, "Give her a handicapped
child."

The angel is curious. "Why this one, God? She's so happy."

"Exactly," says God. "Could I give a handicapped child to a mother who does
not know laughter? That would be cruel."

"But has she patience?" asks the angel.

"I don't want her to have too much patience or she will drown in a sea of
self-pity and despair. Once the shock and resentment wear off, she'll
handle it.

"I watched her today. She has that feeling of self and independence that is
so rare and so necessary in a mother. You see, the child I'm going to give
her has his own world. She has to make it live in her world, and that's not
going to be easy."

"But, Lord, I don't think she even believes in you."

God smiles. "No matter. I can fix that. This one is perfect. She has just
enough selfishness."

The angel gasps, "Selfishness? Is that a virtue?"

God nods. "If she can't separate herself from the child occasionally,
she'll never survive. Yes, here is a woman whom I will bless with a child
less than perfect. She doesn't realize it yet, but she is to be envied.
She will never take for granted a 'spoken word.' She will never consider a
'step' ordinary. When her child says 'Momma' for the first time, she will
be present at a miracle and know it! When she describes a tree or a sunset
to her blind child, she will see it as few people ever see my creations.

"I will permit her to see clearly the things I see . . . ignorance,
cruelty, prejudice . . . and allow her to rise above them. She will never
be alone. I will be at her side every minute of every day of her life,
because she is doing my work as surely as she is here by my side."

"And what about her patron saint?" asks the angel, pen poised midair.

God smiles. "A mirror will suffice."

- Erma Bombeck, May, 1980

My Mom sent this to me after my son was born. He was 3 months premature, with health problems. This made such an impact on me, that I had to do a search for it today to send to my daughter. She said it made her feel a lot better!
 

prepgirl44

Veteran Member
Praying for healing, per your request, whether the healing of this child in the womb or the healing of your hearts is up to God.

From my perspective there is no greater gift than a child with Down's. These children are an incredible special, special gift from God.

Dobbins said it well, indeed their spirit is a faithful copy of their maker. What an honor to be blessed with such a child!
 

Jubilee on Earth

Veteran Member
Oh, what a tough thing! I can't imagine all of the emotions. I have a friend with a Down's child, and she is the light of their lives. Down's children love so deeply. There are tons of resources and support -- rely on them all. Prayers and blessings to your family...
 

LeViolinist

Veteran Member
YHWH, bless this family and this baby. In Yahshua, Amein!

Preliminary tests told my grandaughter that her baby would not be normal. She and her hubby chose to ignore them, as well as further tests. "Its our baby and we will love it no matter what!" My first great-grand baby is beautiful, healthy, and 3 years old! Born on xmas! and what a gift!
 

Dinghy

Veteran Member
I got a text from my daughter last night. She is going to be fine I think. She is just worried that she won't have the strength she will need. With everything she has gone through since she went in the military, I know she already has enough. I am so proud of her for how well she is handling the news already!

Thank you all for your prayers, and words of encouragement. I really appreciate each and every one!!
 

kua

Veteran Member
Prayers sent. God knows what we need even before we ask. Sometimes we question what he sends, but if we bear in mind, he has our best interests at heart, and thank him for that which he has sent, we can be delivered of unbelievably wondrous gifts. A baby! What a wonderful thing to be anticipating. Many prayers sent forth on behalf of this young family.
 

Marthanoir

TB Fanatic
any child is a blessing, none of my children have Downs but I have worked with plenty of Down Syndrome children and there are plenty of Down Syndrome children in the area, they are some of the most loving , caring and happiest children I've been fortunate to meet, yes they are hard work but like all hard work it can be the most rewarding, every time I see a Down Syndrome child it reminds me that in countries where abortion is not illegal like Ireland many of these children wouldn't have been born, many children without Downs wouldn't have been born as the would be parents would have been talked into killing the child by a doctor after a false reading,
A child is Gods way of saying life will go on
 

Michigan Majik

FreeSpirit, with attitude
I've worked with many many Down Syndrome youth and adults over the years. The majority are smart, perceptive
and precious. The few exceptions were those raised in an institution without a families love.
A few years ago I mentioned to a colleague that I rarely saw Down Syndrome little kids anymore.
She said that with modern testing many parents chose to abort their baby if they are Downs... I was horrified.
I'm more horrified after reading comments about false positive tests...

A Downs child is a blessing...
 

Dinghy

Veteran Member
The test results came this afternoon. The baby has Down's! On the plus side, the doctor said the baby's heart looks great. I guess a lot of babies with Down's have serious heart problems. My daughter is flying home to spend Memorial weekend camping with our family. She is already talking about trying to get stationed closer to all of us so we can spend more time together! You just can't beat the support of a big, loving family! Lol She sent me a picture of the sonagram today. The baby looks beautiful to me!! I keep telling her that you all are saying how much of a blessing these babies are. She has talked to a few people already who either have a baby with Down's, or work with them in some capacity. They have already made her feel much better!
Thanks for all your support and prayers...they are going to need them!
 

Dennis Olson

Chief Curmudgeon
_______________
The bummer about people with Down's is that very frequently, they require care for their entire lives. My prayers for everyone in the family.
 

Palmetto

Son, Husband, Father
Yes, lots of false positives on that test.

Either way, life is a blessing!!

God will give her the strength.
 

NamasteMama

Inactive
I was told my last baby would have downs, and she's totally fine, those test are often wrong. Even if its right, that little baby will be the biggest blessing your family ever received! Prayers for peace in your hearts to know that The Lord will not send you anything you can not handle.
 
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