fibro-my-HELL-gia

[duchess47]

Also...have you heard this one? The good new about fibro is that it won't kill you. The bad news about fibro is that it won't kill you.

[BigFootsCousin]

Has anybody here had any success using Cymbalta? I'm seeing my PCP in two weeks and I'm trying to learn as much as I can as fast as I can.

BFC

[LeafyForest]

Here is an AmazonDOTcom web page that shows the book that I just finished reading about fibromyalgia by Dr. David Dryland.
http://www.amazon.com/Fibromyalgia-S...0105623&sr=8-1
Dr. Dryland also seems to have a fibromyalgia 'forum' that I also signed up for. As I know that some of you here also have this damnable disease, I'll forward his web address here as well.
www.drdryland.com

I hope, that as I personally go on this fibroHELL journey of mine, that maybe some of you can get some answers for yourselves as well. His book/web site are worth a look. BFC

Thanks for the web site's - my sister has many fibro symptoms and so am sending these sites on to her.

[Tundra Gypsy]

My younger sister has fibro.......and RLS.....restless leg syndrome. Does anyone have RLS? I was wondering if they went hand in hand. Out of the four sisters, we were trying to figure out why our younger sister has this and the other three don't. She was the only one who took the polio sugar cubes when she was younger without my mother knowing; we didn't.....my mother didn't trust the medical profession then...later we were told the first polio batches were contaminated...seems like things don't change with the pharms....

[duchess47]

Yes, I have RLS which has progressed to severe pain and cramping in my right leg. Taking Neurontin (sic) seems to keep that under control.

[ppbenn]

[QUOTE=BigFootsCousin;4226998]Has anybody here had any success using Cymbalta? I'm seeing my PCP in two weeks and I'm trying to learn as much as I can as fast as I can.

BFC[/

Cymbalta did NOTHING to ease my pain, help me sleep, or allieviate IBS, the FOG, or other symptoms. It did increase my dizziness, and made me feel car sick, or like I had morning sickness was on it about 4 months.
Have tried all current recommended medications and alternative therapies.
What helps me now VitD 5000 Daily. Fish oil, 2 aleve in the am , helps pain as much as script meds and I've tried them all but less side effects exceptfor epigastric, Metamucil and MAGNESIUM Maleate and epsom salts baths at nite.
Steroids also help but cant wont deal with side effects long term.
I am outside daily ( I have seven horses and a farm) and
Of course when I cant take it any more I take it to the Lord in prayer.

[BigFootsCousin]

[QUOTE=ppbenn;4294695]

Has anybody here had any success using Cymbalta? I'm seeing my PCP in two weeks and I'm trying to learn as much as I can as fast as I can.

BFC[/

Cymbalta did NOTHING to ease my pain, help me sleep, or allieviate IBS, the FOG, or other symptoms. It did increase my dizziness, and made me feel car sick, or like I had morning sickness was on it about 4 months.
Have tried all current recommended medications and alternative therapies.
What helps me now VitD 5000 Daily. Fish oil, 2 aleve in the am , helps pain as much as script meds and I've tried them all but less side effects exceptfor epigastric, Metamucil and MAGNESIUM Maleate and epsom salts baths at nite.
Steroids also help but cant wont deal with side effects long term.
I am outside daily ( I have seven horses and a farm) and
Of course when I cant take it any more I take it to the Lord in prayer.

Yes, prayer on my part, multiple times daily, everyday. Thank you for giving me your perspective on Cymbalta. Hey, what are the epsom salt baths doing for you? I've never heard of anyone using them for this disease.

BFC

[banana.republic.us]

My wife has FM.

She went to a rheumatologist who did a bunch of blood work.

He prescribed Magnesium malic, and Vitamin B6. If she takes it she's good to go. If she misses a couple of days it starts to kick up again. It's rather debilitating for her.

[FireDance]

My wife has FM.

She went to a rheumatologist who did a bunch of blood work.

He prescribed Magnesium malic, and Vitamin B6. If she takes it she's good to go. If she misses a couple of days it starts to kick up again. It's rather debilitating for her.

Any dosing info on this BR? Thanks much!

[banana.republic.us]

I think she takes the Magnesium 3 times a day. They're large pills called Magnesium Malate. The B-6 we bought from Puritan pride... That I think is once a day, but it's water soluble so I doubt a couple of times a day wouldn't hurt. This combo worked for her.

After the Doc got her going he closed her file and told her to come back if you have problems. That was 2 years ago.

[FireDance]

I think she takes the Magnesium 3 times a day. They're large pills called Magnesium Malate. The B-6 we bought from Puritan pride... That I think is once a day, but it's water soluble so I doubt a couple of times a day wouldn't hurt. This combo worked for her.

After the Doc got her going he closed her file and told her to come back if you have problems. That was 2 years ago.

Thank you BR. I've often suspected a magnesium/calcium connection. My dd also experiences migraines and I think the whole lot is connected in some way and for some reason I decided that Nature's Calm would be something that would flatten the migraines and possibly the FM. Of course, you cannot force someone to take something they don't want to and since I'm not a MD I don't know anything (LOL). I'll breeze your post past her & see if she'll grab some on her own and try it.
I'm not exactly sure where the B6 comes in, but sure would be better for you and less expensive than Lyrica. Rheumy gave dd some samples of that; we looked at the side effects and decided that would be a last resort. He also recommended a brand of D3 that he apparently gets some kind of $ back on. The dosage IS verified in the lab and all that good stuff, but I had D3 and we used that and her levels came up to a proper level so we didn't switch to his. It appeared to be almost a multi-level marketing thing where if we entered in his number he would get some of the proceeds. It was pretty expensive for D3 - not super-expensive, but I didn't see a reason to put his kid through college over time.

[banana.republic.us]

Thank you BR. I've often suspected a magnesium/calcium connection. My dd also experiences migraines and I think the whole lot is connected in some way and for some reason I decided that Nature's Calm would be something that would flatten the migraines and possibly the FM. Of course, you cannot force someone to take something they don't want to and since I'm not a MD I don't know anything (LOL). I'll breeze your post past her & see if she'll grab some on her own and try it.
I'm not exactly sure where the B6 comes in, but sure would be better for you and less expensive than Lyrica. Rheumy gave dd some samples of that; we looked at the side effects and decided that would be a last resort. He also recommended a brand of D3 that he apparently gets some kind of $ back on. The dosage IS verified in the lab and all that good stuff, but I had D3 and we used that and her levels came up to a proper level so we didn't switch to his. It appeared to be almost a multi-level marketing thing where if we entered in his number he would get some of the proceeds. It was pretty expensive for D3 - not super-expensive, but I didn't see a reason to put his kid through college over time.

Doc had her on Lyrica for a bit as well. Wifey doesn't comply with medication very well, and Doc picked that up. She asked if she needed to buy the vitamins from him and he said no. He's a bit of a dry egg who could care less and be happier if he never had to see you again. For a doctor that's a PRIMO trait IMO>

[Kathy in WV]

I have it... It SUCKS. . IT SUCKS!!! I have a question and a comment. My ex was in Desert Storm and while there he caught a bad Mycoplasma infection and nearly died. About 4-6 weeks after he came home I got sick for 2 weeks and shortly after the pain started. Coincidence? Maybe. This year, before Christmas, I got mycoplasma pneumonia and I mean I was really sick. The body pain was horrific. And it was the pain of fibro, but greatly magnified. The pain was in all my fibro places but it was pain on steroids. What if some of what the doctors are calling Fibro is actually a constant low grade myco infection or a recurring myco? I was hospitalized and had a Levaquin IV, then 10 days of oral lev. Approx. 4 days after I finished with the meds, I woke up with fever and pain again. I dosed with colloidal silver and got better again. Bloodwork is clear now, but I've continued to have periods of low fever and hurting. It reminds me of a friend of mine who has malaria the way it comes back....

[duchess47]

I have it... It SUCKS. . IT SUCKS!!! I have a question and a comment. My ex was in Desert Storm and while there he caught a bad Mycoplasma infection and nearly died. About 4-6 weeks after he came home I got sick for 2 weeks and shortly after the pain started. Coincidence? Maybe. This year, before Christmas, I got mycoplasma pneumonia and I mean I was really sick. The body pain was horrific. And it was the pain of fibro, but greatly magnified. The pain was in all my fibro places but it was pain on steroids. What if some of what the doctors are calling Fibro is actually a constant low grade myco infection or a recurring myco? I was hospitalized and had a Levaquin IV, then 10 days of oral lev. Approx. 4 days after I finished with the meds, I woke up with fever and pain again. I dosed with colloidal silver and got better again. Bloodwork is clear now, but I've continued to have periods of low fever and hurting. It reminds me of a friend of mine who has malaria the way it comes back....

I've thought for a long time that fibro might be *cured* to some extent, maybe completed by massive antiiotics for a long period of time - not a week but maybe a month or two. I have noticed that when a doctor puts me on antibiotics for a sinus infection or something I will feel better for a few days. Try to get a doctor to agree to do that though. I do take OregoMax though, on for a couple of weeks, then off for awhile. You're right fibro SUCKS.

[packyderms_wife]

I've thought for a long time that fibro might be *cured* to some extent, maybe completed by massive antiiotics for a long period of time - not a week but maybe a month or two. I have noticed that when a doctor puts me on antibiotics for a sinus infection or something I will feel better for a few days. Try to get a doctor to agree to do that though. I do take OregoMax though, on for a couple of weeks, then off for awhile. You're right fibro SUCKS.

I have yet to have a sinus infection cleared with traditional antibiotics, everytime I get a nasty sinus infection after the obligitory 3-4 weeks of antibiotics I demand a course of Flagyl and POOF seven days later I'm cured! Flagyl is deemed an antibiotic but in reality it is an antifungal. Most sinus infections are fungal infections.

K-

[packyderms_wife]

I have it... It SUCKS. . IT SUCKS!!! I have a question and a comment. My ex was in Desert Storm and while there he caught a bad Mycoplasma infection and nearly died. About 4-6 weeks after he came home I got sick for 2 weeks and shortly after the pain started. Coincidence? Maybe. This year, before Christmas, I got mycoplasma pneumonia and I mean I was really sick. The body pain was horrific. And it was the pain of fibro, but greatly magnified. The pain was in all my fibro places but it was pain on steroids. What if some of what the doctors are calling Fibro is actually a constant low grade myco infection or a recurring myco? I was hospitalized and had a Levaquin IV, then 10 days of oral lev. Approx. 4 days after I finished with the meds, I woke up with fever and pain again. I dosed with colloidal silver and got better again. Bloodwork is clear now, but I've continued to have periods of low fever and hurting. It reminds me of a friend of mine who has malaria the way it comes back....

You just described Lyme's Disease.

[duchess47]

I have yet to have a sinus infection cleared with traditional antibiotics, everytime I get a nasty sinus infection after the obligitory 3-4 weeks of antibiotics I demand a course of Flagyl and POOF seven days later I'm cured! Flagyl is deemed an antibiotic but in reality it is an antifungal. Most sinus infections are fungal infections.

K-

Thanks, I'll ask my doctor about that. He's pretty good about listening

[Oldironboy]

I'm batting 1,000 with Kangen Water and Fibromyalgia sufferers. Unfortunately, I have to say I have only had two customers with the malady so far. My pastor's wife's symptoms disappeared 24 days after she started drinking the water. Another customer's symptoms were relieved tremendously as well. Enough that she invested in the machine. I would be happy to provide much more information to anyone interested. You can contact me through my website link below.